by silkweb | Sep 9, 2025 | Events, VHL News
CVHLA EDUCATION DAY: VHL in the Whole Family Friday, October 3rd 10am PST, 1pm EST, 2pm AST Free 2.5h virtual education for HCPs and the VHL community. Featuring guest speakers Dr. Maryam Soleimani and Darian Rogers-Sysak, Certified Child Life Specialist. Including a...
by Lesley Mather | May 22, 2025 | Events, VHL News
Hello Canadian VHL Community! You are formally invited to our 2025 Annual General Meeting. Taking place virtually June 6th at 4pm Eastern Standard Time. Tune in via the meeting link to hear about what we have been up to the last year+ and hear about what our future...
by silkweb | Apr 25, 2025 | Events, VHL News
We’re so excited to launch a new space for connection, support, and good vibes. Starting Thursday, May 22nd, join us for virtual peer support calls—whether you need a listening ear, a friendly face, or just want to hang out with people who get it 💛 🗓️ These...
by silkweb | Nov 13, 2024 | VHL News
Fall 2024 has brought exciting news for Canada’s Von Hippel Lindau (VHL) Warrior Community! The pan-Canadian Pharmaceutical Alliance (pCPA) recently gave a positive recommendation for Welireg/Belzutifan, an innovative new oral medication, to be used in the treatment...
by silkweb | Nov 12, 2024 | VHL News
At the Canadian VHL Alliance, we are committed to bringing you the latest updates and research with all things concerning Von Hippel-Lindau (VHL) disease. That is why we dedicated a day just for learning all things about VHL. The goal of VHL day was to educate...
