Become a volunteer and help make a change!
VHL is a rare disease, and we need your help to focus attention and awareness on VHL to the public. Our work would not be made possible without the help of our amazing volunteers. This is a great opportunity to advocate for VHL as we work towards improving the quality of life of Canadian VHL patients and families. Any amount of help and support makes a difference in connecting a community of warriors.
Sign up to become a CVHLA volunteer today by completing the form below! For more information or inquiries about becoming a volunteer, please contact us.
News & Updates
Fall 2024 Brought Exciting News
Fall 2024 has brought exciting news for Canada’s Von Hippel Lindau (VHL) Warrior Community! The pan-Canadian Pharmaceutical Alliance (pCPA) recently gave a positive recommendation for Welireg/Belzutifan, an innovative new oral medication, to be used in the treatment of VHL disease.
This was the best day – Anonymous, Attendee from VHL Day
There is always a first for everything, and this year, the CVHLA hosted our very first (but not last) virtual VHL day back in May 2024.
2024 National CVHLA Walk
What a fantastic response by Canadian VHL Alliance family, caregivers, and friends! Overall we raised over $12,000 nationally! Wow! The walk was truly national with 3 events stretching from Charlottetown PEI, to Chilliwack BC, with an Ontario event in Whitby. The...
Get in Touch. Get Involved.
Become a volunteer and help make a change! VHL is a rare disease, and we need your help to focus attention and awareness on VHL to the public.