Helping & Supporting Families
Living with VHL and caring for a VHL patient is a lifelong burden that can take its toll on your mental health. From constant screening appointments, to anxiously awaiting results, grief for loss of a normal life, or sadly the loss of loved ones. This burden can get heavy and sometimes we need extra support. If you are feeling overwhelmed in this VHL journey please reach out to the support below.
211 is a free and confidential service that can be accessed 24 hours a day, in more than 150 languages, by phone, chat, text, and web. 211 helps connect people to appropriate services in the area to meet their needs.
211 is available by phone, chat, website, and text in different regions – dial or text 2-1-1 or visit 211.ca
If you or someone you know is in immediate crisis or has suicide-related concerns call or text 9-8-8.
Over the past 5 years we have raised over $140,000
Every dollar raised by the CVHLA goes towards VHL research, patient support and VHL community events. A few notable projects include: VHL Day, Co-hosting the International VHL Medical Symposium, funding $120,000 VHL research grant in partnership with the Cancer Research Society
About Your Donations, Where & How They are used
The Canadian von Hippel-Lindau Alliance has been working hard to raise awareness of VHL and to raise Canadian funds. This allows the organization to source and invest in Canadian research for a cure. Over 93% of all funds donated to the Canadian VHL Alliance go directly to research and all donations receive a Canadian charitable donation tax receipt.
Our Board of Directors is made up entirely of volunteers most of whom either have VHL or have close friends or family members who suffer from this disease.
We believe that it is important that you know where your donation is going and how it is helping your friends and families who suffer from von Hippel-Lindau disease.
We raise funds to support VHL research enabling:
- The funding of research promoting understanding and treatment of unique von Hippel-Lindau Types and their effect on disease management
- The identification of and the advocation for best practice diagnosis, surveillance, and treatment of von Hippel-Lindau disease
- The enhancement of the quality of life for VHL patients and their families and generations to come.
You can donate by making a direct donation here or by mailing a cheque to CVHLA, 48195 Sherlaw Rd, Chilliwack, BC V4Z 1H4
The Canadian VHL Alliance thanks you for your support for VHL Warriors across Canada now and in the future. Without your donation, our organization would not be able to fulfil its mission. We are a registered Canadian Charity and you will be offered alternative methods of payment and issued a receipt for your donation.
The Canadian VHL Alliance collects your personal information in order to process your donation, issue your receipt and occasionally deliver updates about the charity, its impact and other ways you can help or get involved.
Other Ways to Give
Matching Gifts
Your employer may offer a donation program that will match any donation you make 1:1 or even 2:1. To find out if your company has a matching gift policy, please enter your employer’s name below
Become a Corporate Sponsor
A corporate leadership gift to the Canadian VHL Alliance can be a meaningful way to support the charity and really make a difference. You have the opportunity to match your employees’ contributions to your company’s donations. Knowing that their donations are being matched dollar for dollar will be both inspiring and powerful to your staff
To learn how your company can support VHL in your community, please contact:Canadian VHL Alliance at email: info@cvhla.org
Sponsor a local VHL Fundraiser Event or Program in Your Community
You can support Canadian VHL Alliance events & programs in your community. This sponsorship can make a difference to the success of the event and to those individuals suffering form VHL. May is International VHL Month and many walks, runs, softball and golf tournaments take place at this time.
Through corporate event sponsorship, your company will gain exposure throughout your community as a proud supporter of the Canadian VHL Alliance.
Participate
Volunteer
Volunteer at a fundraising event in your community. Every event can use an extra pair of hands to help out. This allows you to meet people in our VHL Community and make a difference supporting the cause.
Volunteer to participate in a committee with the Board of Directors. The CVHLA Board needs help with the communication committee, the research funding review committee and general support and outreach.
Apply to become a Board Member
We are an entirely volunteer group of professionals who are hands-on and excited about the future of our organization. We would love to welcome you to the board if you are passionate about beating VHL and bring an expertise and a willingness to work passionately toward this goal.
Find an Event Near You
We are starting to gain traction on our fundraising activities and will post on-going fundraising events on our facebook page and our events calendar. If you cannot find something posted but would like to participate, please contact us at info@cvhla.org and we will assist you in the best way we can.
Host an Event
It may not be as hard as you think to host a fundraising event in your community. We are happy to provide you with ideas, information and tips on hosting a fundraising event. There are a number of different ways to participate. You can join a community event, get your co-workers. school, or church involved. Your enthusiasm can go a long way in beating VHL disease and the many other genetic cancers that we are fighting against.
Contact info@cvhla.ca for more information