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Fall 2024 Brought Exciting News
Fall 2024 has brought exciting news for Canada’s Von Hippel Lindau (VHL) Warrior Community! The pan-Canadian Pharmaceutical Alliance (pCPA) recently gave a positive recommendation for Welireg/Belzutifan, an innovative new oral medication, to be used in the treatment of VHL disease.
This was the best day – Anonymous, Attendee from VHL Day
There is always a first for everything, and this year, the CVHLA hosted our very first (but not last) virtual VHL day back in May 2024.
2024 National CVHLA Walk
What a fantastic response by Canadian VHL Alliance family, caregivers, and friends! Overall we raised over $12,000 nationally! Wow! The walk was truly national with 3 events stretching from Charlottetown PEI, to Chilliwack BC, with an Ontario event in Whitby. The...
2022 VHL International Medical Symposium
2022 VHL International Medical Symposium Link to presentations The virtual Symposium brought together researchers and medical professionals from all over the globe to discuss the latest in VHL research and treatment. The 2022 Symposium was held in partnership with the...
Canadian VHL Alliance (CVHLA) Research Funding
Since 2018 we have created $480,000 in Canadian VHL research grants with our partner the Cancer Research Society!
2020 – Second $120,000 CVHLA and CRS Research Grant Announced!
Fundraising led by the Rick Bracey Memorial baseball tournament in Surrey BC and the Ontario Walk and Dance fundraising and the countless individual donations from across the country have allowed the CVHLA to put up a second $60,000 which will be spread over 2020 and...
2020 – $120,000 Research Grant Partnership
In November of 2019 the Canadian VHL Alliance (CVHLA) has entered into a second partnership with The Cancer Research Society (CRS), a Canadian based organization that will match the $60,000 CVHLA donation, to create a $120,000 grant that was awarded to Dr. Sandra...
2018 – $120,000 Research Grant Partnership
The first partnership between the CVHLA and the CRS in 2018 created a grant that was won by Dr. Najafabadi (see above for details) These prizes have attracted very high quality VHL related proposals that the CRS has also funded. Click here for more details. More...