Raising funds to support VHL Research
The Canadian VHL Alliance (CVHLA) is a non-profit focused on supporting patients, families, and caregivers affected by von Hippel Lindau disease (VHL). The CVHLA is a great resource for patients, caregivers, researchers, and the medical community.
VHL is a genetic disease that can cause tumors (benign or malignant) to develop in up to 10 different organs throughout a patient’s life.
Latest News & Events
Fall 2024 Brought Exciting News
Fall 2024 has brought exciting news for Canada’s Von Hippel Lindau (VHL) Warrior Community! The pan-Canadian Pharmaceutical Alliance (pCPA) recently gave a positive recommendation for Welireg/Belzutifan, an innovative new oral medication, to be used in the treatment of VHL disease.
This was the best day – Anonymous, Attendee from VHL Day
There is always a first for everything, and this year, the CVHLA hosted our very first (but not last) virtual VHL day back in May 2024.
2024 National CVHLA Walk
What a fantastic response by Canadian VHL Alliance family, caregivers, and friends! Overall we raised over $12,000 nationally! Wow! The walk was truly national with 3 events stretching from Charlottetown PEI, to Chilliwack BC, with an Ontario event in Whitby. The...
ABOUT CVHLA
The Canadian VHL Alliance is a non-profit focused on supporting patients, families, and caregivers affected by von Hippel Lindau disease (VHL).
Get Involved
Become a volunteer and help make a change! VHL is a rare disease, and we need your help to focus attention and awareness on VHL to the public.
Make a Difference
The Canadian VHL Alliance thanks you for your support for VHL Warriors across Canada now and in the future. Without your donation, our organization would not be able to fulfil its mission.
CVHLA RESEARCH HIGHLIGHTS
We believe it is important you know where your donation is going and how it is helping your friends and families who suffer from von Hippel-Lindau disease.
Your generosity goes a long way.
CVHLA RESEARCH
The Canadian von Hippel-Lindau Alliance has been working hard to raise awareness of VHL and to raise Canadian funds. This allows the organization to source and invest in Canadian research for a cure. Over 93% of all funds donated to the Canadian VHL Alliance go directly to research and all donations receive a Canadian charitable donation tax receipt.
$480,000
In 2018 the CVHLA formed a partnership with the Cancer Research Society (CRS) that has turned our $120,000 of research money into $480,000 of Canadian Research over the last 3 years.
$240,000
Your CVHLA donations of $60,000 were matched by the Cancer Research Society (CRS) to create a $120,000 research grant. A second grant of $120,000 was awarded to a second group by the CRS, totaling $240,000 in VHL research for 2020.
$240,000
Your CVHLA donations of $60,000 were matched by the CRS to create a $120,000 research grant that was awarded to Dr. Najafabadi McGill University.A second grant of $120,000 was awarded to a second group by the CRS, totaling $240,000 in VHL research for 2018.
Our History
The Canadian VHL Alliance has been active for over 20 years and has partnered with the US VHL Alliance on key initiatives. Additionally our organization is affiliated with twenty-two International VHL Alliances globally.
The money that we have raised through local fundraising activities, like the Rick Bracey Memorial Tournament and the generosity of Canadian donors, has allowed us to support our partner, the Cancer Research Society’s (CRS) efforts. The CRS turned our $120,000 into $480,000 of research on VHL.
We also help by providing education and support to Canadian VHL patients and their families.
Our Mission
To fund VHL research, education and support in Canada.
Become a Volunteer. Get Involved.
Become a volunteer and help make a change! VHL is a rare disease, and we need your help to focus attention and awareness on VHL to the public.
Become a Volunteer and Help Make Change
VHL is a rare disease, and we need your help to focus attention and awareness on VHL to the public.