by silkweb | Mar 10, 2025 | Events
REGISTER When: June 6-8 2025 starting 6:30PM- Midday on June 8 Where: Chateau Granville, 1100 Granville St, Vancouver, BC V6Z 2B6 Who: Canadian VHL patients 19-40 What: The CVHLA Young Adult Retreat is a weekend created just for you—a chance to connect with others who...
by silkweb | Nov 13, 2024 | VHL News
Fall 2024 has brought exciting news for Canada’s Von Hippel Lindau (VHL) Warrior Community! The pan-Canadian Pharmaceutical Alliance (pCPA) recently gave a positive recommendation for Welireg/Belzutifan, an innovative new oral medication, to be used in the treatment...
by silkweb | Nov 12, 2024 | VHL News
At the Canadian VHL Alliance, we are committed to bringing you the latest updates and research with all things concerning Von Hippel-Lindau (VHL) disease. That is why we dedicated a day just for learning all things about VHL. The goal of VHL day was to educate...
by silkweb | May 29, 2024 | Fundraising
What a fantastic response by Canadian VHL Alliance family, caregivers, and friends! Overall we raised over $12,000 nationally! Wow! The walk was truly national with 3 events stretching from Charlottetown PEI, to Chilliwack BC, with an Ontario event in Whitby. The...
by silkweb | May 29, 2024 | VHL International
2022 VHL International Medical Symposium Link to presentations The virtual Symposium brought together researchers and medical professionals from all over the globe to discuss the latest in VHL research and treatment. The 2022 Symposium was held in partnership with the...
