Raising funds to support VHL research

CVHLA EDUCATION DAY: VHL in the Whole Family

CVHLA EDUCATION DAY: VHL in the Whole Family

CVHLA EDUCATION DAY: VHL in the Whole Family Friday, October 3rd 10am PST, 1pm EST, 2pm AST Free 2.5h virtual education for HCPs and the VHL community. Featuring guest speakers Dr. Maryam Soleimani and Darian Rogers-Sysak, Certified Child Life Specialist. Including a...
Annual General Meeting – 2025

Annual General Meeting – 2025

Hello Canadian VHL Community! You are formally invited to our 2025 Annual General Meeting.   Taking place virtually June 6th at 4pm Eastern Standard Time. Tune in via the meeting link to hear about what we have been up to the last year+ and hear about what our future...
Introducing VHL Vibes: Monthly Community Calls

Introducing VHL Vibes: Monthly Community Calls

We’re so excited to launch a new space for connection, support, and good vibes. Starting Thursday, May 22nd, join us for virtual peer support calls—whether you need a listening ear, a friendly face, or just want to hang out with people who get it 💛 🗓️ These...
CVHLA Young Warrior Connect: 2025

CVHLA Young Warrior Connect: 2025

REGISTER When: June 6-8 2025 starting 6:30PM- Midday on June 8 Where: Chateau Granville, 1100 Granville St, Vancouver, BC V6Z 2B6 Who: Canadian VHL patients 19-40 What: The CVHLA Young Adult Retreat is a weekend created just for you—a chance to connect with others who...