by silkweb | Sep 9, 2025 | Events, VHL News
CVHLA EDUCATION DAY: VHL in the Whole Family Friday, October 3rd 10am PST, 1pm EST, 2pm AST Free 2.5h virtual education for HCPs and the VHL community. Featuring guest speakers Dr. Maryam Soleimani and Darian Rogers-Sysak, Certified Child Life Specialist. Including a...
by silkweb | Apr 25, 2025 | Events, VHL News
We’re so excited to launch a new space for connection, support, and good vibes. Starting Thursday, May 22nd, join us for virtual peer support calls—whether you need a listening ear, a friendly face, or just want to hang out with people who get it 💛 🗓️ These...
by silkweb | Mar 10, 2025 | Events
REGISTER When: June 6-8 2025 starting 6:30PM- Midday on June 8 Where: Chateau Granville, 1100 Granville St, Vancouver, BC V6Z 2B6 Who: Canadian VHL patients 19-40 What: The CVHLA Young Adult Retreat is a weekend created just for you—a chance to connect with others who...
by silkweb | Nov 13, 2024 | VHL News
Fall 2024 has brought exciting news for Canada’s Von Hippel Lindau (VHL) Warrior Community! The pan-Canadian Pharmaceutical Alliance (pCPA) recently gave a positive recommendation for Welireg/Belzutifan, an innovative new oral medication, to be used in the treatment...
by silkweb | Nov 12, 2024 | VHL News
At the Canadian VHL Alliance, we are committed to bringing you the latest updates and research with all things concerning Von Hippel-Lindau (VHL) disease. That is why we dedicated a day just for learning all things about VHL. The goal of VHL day was to educate...
