Fundraising & Events
You can support the CVHLA events and programs in your community! The CVHLA is dedicated to funding research that will make a real difference in patient’s lives now and in the future. With every dollar you donate, you are making a difference in not just the lives of today’s VHL Warriors but in the lives of future VHL Warriors that many of us will know and love. Your contribution will directly fund research grants and programs including lifesaving research and clinical trials.
We strive to host events that are not only educational but also provide an opportunity for VHL warriors, caregivers, and simply those who just want to make a difference to come out and connect with one another!
UPCOMING EVENTS
How You Can Get Involved
News & Updates
CVHLA EDUCATION DAY: VHL in the Whole Family
CVHLA EDUCATION DAY: VHL in the Whole Family Friday, October 3rd 10am PST, 1pm EST, 2pm AST Free 2.5h virtual education for HCPs and the VHL community. Featuring guest speakers Dr. Maryam Soleimani and Darian Rogers-Sysak, Certified Child Life Specialist. Including a...
Annual General Meeting – 2025
Hello Canadian VHL Community! You are formally invited to our 2025 Annual General Meeting. Taking place virtually June 6th at 4pm Eastern Standard Time. Tune in via the meeting link to hear about what we have been up to the last year+ and hear about what our future...
Introducing VHL Vibes: Monthly Community Calls
We're so excited to launch a new space for connection, support, and good vibes. Starting Thursday, May 22nd, join us for virtual peer support calls—whether you need a listening ear, a friendly face, or just want to hang out with people who get it 💛 🗓️ These calls will...
Become a Volunteer and Help Make Change
VHL is a rare disease, and we need your help to focus attention and awareness on VHL to the public.