Fundraising & Events
You can support the CVHLA events and programs in your community! The CVHLA is dedicated to funding research that will make a real difference in patient’s lives now and in the future. With every dollar you donate, you are making a difference in not just the lives of today’s VHL Warriors but in the lives of future VHL Warriors that many of us will know and love. Your contribution will directly fund research grants and programs including lifesaving research and clinical trials.
We strive to host events that are not only educational but also provide an opportunity for VHL warriors, caregivers, and simply those who just want to make a difference to come out and connect with one another!
UPCOMING EVENTS
CVHLA Young Warrior Connect: 2025
How You Can Get Involved
News & Updates
This was the best day – Anonymous, Attendee from VHL Day
There is always a first for everything, and this year, the CVHLA hosted our very first (but not last) virtual VHL day back in May 2024.
2024 National CVHLA Walk
What a fantastic response by Canadian VHL Alliance family, caregivers, and friends! Overall we raised over $12,000 nationally! Wow! The walk was truly national with 3 events stretching from Charlottetown PEI, to Chilliwack BC, with an Ontario event in Whitby. The...
2022 VHL International Medical Symposium
2022 VHL International Medical Symposium Link to presentations The virtual Symposium brought together researchers and medical professionals from all over the globe to discuss the latest in VHL research and treatment. The 2022 Symposium was held in partnership with the...
Become a Volunteer and Help Make Change
VHL is a rare disease, and we need your help to focus attention and awareness on VHL to the public.