Fundraising & Events
You can support the CVHLA events and programs in your community! The CVHLA is dedicated to funding research that will make a real difference in patient’s lives now and in the future. With every dollar you donate, you are making a difference in not just the lives of today’s VHL Warriors but in the lives of future VHL Warriors that many of us will know and love. Your contribution will directly fund research grants and programs including lifesaving research and clinical trials.
We strive to host events that are not only educational but also provide an opportunity for VHL warriors, caregivers, and simply those who just want to make a difference to come out and connect with one another!
How You Can Get Involved
News & Updates
2022 VHL International Medical Symposium
2022 VHL International Medical Symposium Link to presentations The virtual Symposium brought together researchers and medical professionals from all over the globe to discuss the latest in VHL research and treatment. The 2022 Symposium was held in partnership with the...
Canadian VHL Alliance (CVHLA) Research Funding
Since 2018 we have created $480,000 in Canadian VHL research grants with our partner the Cancer Research Society!
2020 – Second $120,000 CVHLA and CRS Research Grant Announced!
Fundraising led by the Rick Bracey Memorial baseball tournament in Surrey BC and the Ontario Walk and Dance fundraising and the countless individual donations from across the country have allowed the CVHLA to put up a second $60,000 which will be spread over 2020 and...
Become a Volunteer and Help Make Change
VHL is a rare disease, and we need your help to focus attention and awareness on VHL to the public.