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CVHLA EDUCATION DAY: VHL in the Whole Family
CVHLA EDUCATION DAY: VHL in the Whole Family Friday, October 3rd 10am PST, 1pm EST, 2pm AST Free 2.5h virtual education for HCPs and the VHL community. Featuring guest speakers Dr. Maryam Soleimani and Darian Rogers-Sysak, Certified Child Life Specialist. Including a...
Annual General Meeting – 2025
Hello Canadian VHL Community! You are formally invited to our 2025 Annual General Meeting. Taking place virtually June 6th at 4pm Eastern Standard Time. Tune in via the meeting link to hear about what we have been up to the last year+ and hear about what our future...
Introducing VHL Vibes: Monthly Community Calls
We're so excited to launch a new space for connection, support, and good vibes. Starting Thursday, May 22nd, join us for virtual peer support calls—whether you need a listening ear, a friendly face, or just want to hang out with people who get it 💛 🗓️ These calls will...
CVHLA Young Warrior Connect: 2025
When: June 6-8 2025 starting 6:30PM- Midday on June 8 Where: Chateau Granville, 1100 Granville St, Vancouver, BC V6Z 2B6 Who: Canadian VHL patients 19-40 What: The CVHLA Young Adult Retreat is a weekend created just for you—a chance to connect with others who truly...
Fall 2024 Brought Exciting News
Fall 2024 has brought exciting news for Canada’s Von Hippel Lindau (VHL) Warrior Community! The pan-Canadian Pharmaceutical Alliance (pCPA) recently gave a positive recommendation for Welireg/Belzutifan, an innovative new oral medication, to be used in the treatment of VHL disease.
This was the best day – Anonymous, Attendee from VHL Day
There is always a first for everything, and this year, the CVHLA hosted our very first (but not last) virtual VHL day back in May 2024.
2024 National CVHLA Walk
What a fantastic response by Canadian VHL Alliance family, caregivers, and friends! Overall we raised over $12,000 nationally! Wow! The walk was truly national with 3 events stretching from Charlottetown PEI, to Chilliwack BC, with an Ontario event in Whitby. The...
2022 VHL International Medical Symposium
2022 VHL International Medical Symposium Link to presentations The virtual Symposium brought together researchers and medical professionals from all over the globe to discuss the latest in VHL research and treatment. The 2022 Symposium was held in partnership with the...
Canadian VHL Alliance (CVHLA) Research Funding
Since 2018 we have created $480,000 in Canadian VHL research grants with our partner the Cancer Research Society!
2020 – Second $120,000 CVHLA and CRS Research Grant Announced!
Fundraising led by the Rick Bracey Memorial baseball tournament in Surrey BC and the Ontario Walk and Dance fundraising and the countless individual donations from across the country have allowed the CVHLA to put up a second $60,000 which will be spread over 2020 and...