Become a volunteer and help make a change!
VHL is a rare disease, and we need your help to focus attention and awareness on VHL to the public. Our work would not be made possible without the help of our amazing volunteers. This is a great opportunity to advocate for VHL as we work towards improving the quality of life of Canadian VHL patients and families. Any amount of help and support makes a difference in connecting a community of warriors.
Sign up to become a CVHLA volunteer today by completing the form below! For more information or inquiries about becoming a volunteer, please contact us.
News & Updates
CVHLA EDUCATION DAY: VHL in the Whole Family
CVHLA EDUCATION DAY: VHL in the Whole Family Friday, October 3rd 10am PST, 1pm EST, 2pm AST Free 2.5h virtual education for HCPs and the VHL community. Featuring guest speakers Dr. Maryam Soleimani and Darian Rogers-Sysak, Certified Child Life Specialist. Including a...
Annual General Meeting – 2025
Hello Canadian VHL Community! You are formally invited to our 2025 Annual General Meeting. Taking place virtually June 6th at 4pm Eastern Standard Time. Tune in via the meeting link to hear about what we have been up to the last year+ and hear about what our future...
Introducing VHL Vibes: Monthly Community Calls
We're so excited to launch a new space for connection, support, and good vibes. Starting Thursday, May 22nd, join us for virtual peer support calls—whether you need a listening ear, a friendly face, or just want to hang out with people who get it 💛 🗓️ These calls will...
Get in Touch. Get Involved.
Become a volunteer and help make a change! VHL is a rare disease, and we need your help to focus attention and awareness on VHL to the public.