Events

What: The CVHLA Young Adult Retreat is a weekend created just for you—a chance to connect with others who truly understand what it’s like to live with VHL. This retreat offers a supportive space for young adults to share experiences, learn from experts, and focus on your well-being. You’ll gain knowledge about the latest treatments, connect […]

CVHLA AGM 2025 Hello Canadian VHL Community! You are formally invited to our 2025 Annual General Meeting. Taking place virtually June 6th at 4pm Eastern Standard Time. Tune in via the meeting link to hear about what we have been up to the last year+ and hear about what our future plans hold. Have a […]

CVHLA EDUCATION DAY: VHL in the Whole Family Friday, October 3rd 10am PST, 1pm EST, 2pm AST Free 2.5h virtual education for HCPs and the VHL community. Featuring guest speakers Dr. Maryam Soleimani and Darian Rogers-Sysak, Certified Child Life Specialist. Including a community meet-and-greet.

We’re so excited to launch a new space for connection, support, and good vibes. Starting Thursday, May 22nd, join us for virtual peer support calls—whether you need a listening ear, a friendly face, or just want to hang out with people who get it 💛 🗓️ These calls will be held monthly ☕ Let’s lift […]