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DTSTART;VALUE=DATE:20250606
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CREATED:20250527T164608Z
LAST-MODIFIED:20260331T011401Z
UID:1376838-1749168000-1749427199@cvhla.ca
SUMMARY:CVHLA Young Warrior Connect: 2025
DESCRIPTION:What: The CVHLA Young Adult Retreat is a weekend created just for you—a chance to connect with others who truly understand what it’s like to live with VHL. This retreat offers a supportive space for young adults to share experiences\, learn from experts\, and focus on your well-being. You’ll gain knowledge about the latest treatments\, connect with others navigating similar challenges\, and take part in workshops on everything from mental health to family planning. It’s a weekend to recharge\, find support\, and build lasting relationships in the Canadian VHL community—because no one should face this journey alone. This retreat is an inclusive event that welcomes all Canadian young adults living with VHL\, regardless of background\, identity\, or experience. We’re committed to creating a safe\, supportive environment where everyone can feel seen\, heard\, and valued. Whether you’re new to the VHL community or have been living with it for years\, this weekend is for you—bringing together diverse voices and experiences to share\, learn\, and grow together Fee: $100 – This event is limited to 20 spots. Apply early to ensure you get a spot. What that gets you: Accommodation\, meals\, conference access and fun group activities. Things to Note: \n\nAttendees are responsible for their own travel expenses.\nRegistration deadline May 13\, 2025\nPlease let us know about any accommodations necessary.\nTopics and activities to be covered for the weekend may include: meet and discussion by Dr. Maryam Soleimani\, founder of the BCCancer VHL clinic; group dinners; mental health activities; fertility and family planning with VHL; sightseeing; time for open connection with other VHL Warriors.
URL:https://cvhla.ca/event/cvhla-young-warrior-connect-2025/
LOCATION:Chateau Granville\, 100 Granville St\, Vancouver\, British Columbia\, V6Z2B6\, Canada
ATTACH;FMTTYPE=image/jpeg:https://cvhla.ca/wp-content/uploads/2025/03/young_adult_retreat_img.jpeg
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DTSTART;TZID=UTC:20250606T160000
DTEND;TZID=UTC:20250606T180000
DTSTAMP:20260509T190522
CREATED:20250527T164750Z
LAST-MODIFIED:20250527T172702Z
UID:1376840-1749225600-1749232800@cvhla.ca
SUMMARY:Annual General Meeting – 2025
DESCRIPTION:CVHLA AGM 2025\nHello Canadian VHL Community!\nYou are formally invited to our 2025 Annual General Meeting.\nTaking place virtually June 6th at 4pm Eastern Standard Time. \nTune in via the meeting link to hear about what we have been up to the last year+ and hear about what our future plans hold. \nHave a question? email us at info@cvhla.ca \nFriday\, June 6 · 4:00 – 6:00pm ESTTime zone: America/Halifax \n			\n				JOIN THE GOOGLE MEET
URL:https://cvhla.ca/event/annual-general-meeting-2025/
LOCATION:Ontario
ATTACH;FMTTYPE=image/png:https://cvhla.ca/wp-content/uploads/2025/05/AdobeStock_457080292-scaled.png
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BEGIN:VEVENT
DTSTART;TZID=UTC:20251003T130000
DTEND;TZID=UTC:20251003T153000
DTSTAMP:20260509T190522
CREATED:20250909T183524Z
LAST-MODIFIED:20250918T122052Z
UID:1376879-1759496400-1759505400@cvhla.ca
SUMMARY:CVHLA EDUCATION DAY: VHL and the Whole Family
DESCRIPTION:CVHLA EDUCATION DAY: VHL in the Whole Family \nFriday\, October 3rd 10am PST\, 1pm EST\, 2pm AST \nFree 2.5h virtual education for HCPs and the VHL community. \nFeaturing guest speakers Dr. Maryam Soleimani and Darian Rogers-Sysak\, Certified Child Life Specialist. \nIncluding a community meet-and-greet. \n			\n				Register Now
URL:https://cvhla.ca/event/cvhla-education-day-vhl-in-the-whole-family/
LOCATION:Ontario
ATTACH;FMTTYPE=image/png:https://cvhla.ca/wp-content/uploads/2025/09/VHL_Day_social.png
ORGANIZER;CN="CVHLA":MAILTO:info@cvhla.ca
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BEGIN:VEVENT
DTSTART;TZID=Asia/Shanghai:20251119T170000
DTEND;TZID=Asia/Shanghai:20251119T180000
DTSTAMP:20260509T190522
CREATED:20250527T165018Z
LAST-MODIFIED:20260310T222117Z
UID:1376842-1763571600-1763575200@cvhla.ca
SUMMARY:VHL Vibes - Monthly Community Calls
DESCRIPTION:We’re so excited to launch a new space for connection\, support\, and good vibes. Starting Thursday\, May 22nd\, join us for virtual peer support calls—whether you need a listening ear\, a friendly face\, or just want to hang out with people who get it 💛 🗓️ These calls will be held monthly ☕ Let’s lift each other up\, one chat at a time.\n\n\nJOIN THE CHAT HERE \n\n\n Join Us Wednesday\, March 18th at 5:00pm PST\nCan’t make it in March? No worries — join us for our next meeting in April!
URL:https://cvhla.ca/event/vhl-vibes-monthly-community-calls/
LOCATION:Ontario
ATTACH;FMTTYPE=image/png:https://cvhla.ca/wp-content/uploads/2025/05/VHL-Vibes-Poster.png
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BEGIN:VEVENT
DTSTART;TZID=America/Halifax:20260606T120000
DTEND;TZID=America/Halifax:20260606T150000
DTSTAMP:20260509T190522
CREATED:20260422T011940Z
LAST-MODIFIED:20260422T011940Z
UID:1376933-1780747200-1780758000@cvhla.ca
SUMMARY:Join us for the CVHLA's 1st Food for Thought: Conversations in Care!
DESCRIPTION:Join us for a meal\, a chat and opportunity to connect with VHL Warriors and Healthcare Professionals involved in VHL in Toronto. \nRegistration fee includes a meal and beverage. \nThe restaurant is located a short walk from Union station and there is other transit available. \nParking\nhttps://thewelltoronto.com/services/parking/ \nPayment\nPlease complete the registration questions on this page and submit the form.\nOnce complete\, EMT of $20.00 must be sent to info@cvhla.ca.  Only once both registration form and payment is complete will your ticket purchase be considered valid. \n\n\n                \n                        \n                            Food for Thought: Conversations in Care\n                             \n							"*" indicates required fields \n                         \n \n        \n        	Step 1 of 2\n        	 \n            \n                0%\n            \n                        \n					InstagramThis field is for validation purposes and should be left unchanged.This field is hidden when viewing the formNext Steps: Install a Payment Add-OnTo accept payments on this form you will need to install one of our payment add-ons. To learn more about your payment add-on options\, visit the following page (https://www.gravityforms.com/blog/payment-add-ons). Important: Delete this tip before you publish the form.Contact DetailsName*\n                            \n                            \n                                                    First\n                                                    \n                                                \n                            \n                            \n                                                            Last\n                                                            \n                                                        \n                            \n                        Email*\n                                \n                                    Enter Email\n                                    \n                                \n                                \n                                    Confirm Email\n                                    \n                                \n                                \n                            PhoneAddress*    \n                    \n                         \n                                        Street Address\n                                        \n                                   \n                                        Address Line 2\n                                        \n                                    \n                                    City\n                                    \n                                 \n                                        Province\n                                        AlbertaBritish ColumbiaManitobaNew BrunswickNewfoundland and LabradorNorthwest TerritoriesNova ScotiaNunavutOntarioPrince Edward IslandQuebecSaskatchewanYukon\n                                      \n                                    Postal Code\n                                    \n                                \n                    \n                \n                    \n                    \n                          \n                    \n                \n                \n                    \n                        Event DetailsGender*MaleFemaleNon-binaryMy gender isn't listedPrefer Not to AnswerAge*19-2425-3435-40Are you a:*\n								\n								VHL Warrior\n							\n								\n								Caregiver\n							\n								\n								Healthcare Professional\n							\n								\n								Other\n							If you indicated other\, please note here:Do you have any accessibility requirements?*Do you have any dietary restrictions we should be aware of?*How did you hear about this event?Social MediaGoogleWord of MouthRefer a FriendPast ParticipantOtherTicket DetailsTicket Type\n			\n					\n					Ticket\n			Number of tickets neededTotal
URL:https://cvhla.ca/event/join-us-for-the-cvhlas-1st-food-for-thought-conversations-in-care/
LOCATION:La Plume\, 453 Wellington St W\, Toronto\, Ontario\, M5V 1E7\, Canada
ATTACH;FMTTYPE=image/png:https://cvhla.ca/wp-content/uploads/2026/03/Food-for-Thought_Toronto_June-2026_v1.png
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