Canadian VHL Alliance

CVHLA EDUCATION DAY: VHL and the Whole Family
2025-10-03 13:00 - 15:30 UTC | Ontario
CVHLA EDUCATION DAY: VHL in the Whole Family
Friday, October 3rd 10am PST, 1pm EST, 2pm AST
Free 2.5h virtual education for HCPs and the VHL community.
Featuring guest speakers Dr. Maryam Soleimani and Darian Rogers-Sysak, Certified Child Life Specialist.
Including a community meet-and-greet.

Register Now

Annual General Meeting – 2025
2025-06-06 16:00 - 18:00 | Ontario
CVHLA AGM 2025
Hello Canadian VHL Community!
You are formally invited to our 2025 Annual General Meeting.
Taking place virtually June 6th at 4pm Eastern Standard Time.
Tune in via the meeting link to hear about what we have been up to the last year+ and hear about what our future plans hold.
Have a question? email us at info@cvhla.ca
Friday, June 6 · 4:00 – 6:00pm ESTTime zone: America/Halifax

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CVHLA Young Warrior Connect: 2025
2025-06-06 - 2025-06-08 | Chateau Granville, 100 Granville St, Vancouver, British Columbia, V6Z2B6, Canada
What: The CVHLA Young Adult Retreat is a weekend created just for you—a chance to connect with others who truly understand what it’s like to live with VHL. This retreat offers a supportive space for young adults to share experiences, learn from experts, and focus on your well-being. You’ll gain knowledge about the latest treatments, connect with others navigating similar challenges, and take part in workshops on everything from mental health to family planning. It’s a weekend to recharge, find support, and build lasting relationships in the Canadian VHL community—because no one should face this journey alone. This retreat is an inclusive event that welcomes all Canadian young adults living with VHL, regardless of background, identity, or experience. We’re committed to creating a safe, supportive environment where everyone can feel seen, heard, and valued. Whether you’re new to the VHL community or have been living with it for years, this weekend is for you—bringing together diverse voices and experiences to share, learn, and grow together Fee: $100 – This event is limited to 20 spots. Apply early to ensure you get a spot. What that gets you: Accommodation, meals, conference access and fun group activities. Things to Note:

Attendees are responsible for their own travel expenses.
Registration deadline May 13, 2025
Please let us know about any accommodations necessary.
Topics and activities to be covered for the weekend may include: meet and discussion by Dr. Maryam Soleimani, founder of the BCCancer VHL clinic; group dinners; mental health activities; fertility and family planning with VHL; sightseeing; time for open connection with other VHL Warriors.
